Rare & Uncommon Cancers

The Story of Us: 

The single most important reason I continue to share my family’s story is to spread as much awareness as possible about rare cancers like the one Brendan is fighting.

Like all cancers, rare cancers are completely indiscriminate…Brendan is living proof that it can happen to anyone.

We are in the fortunate position at the moment that the medication keeping Brendan alive is listed on the Pharmaceutical Benefits Scheme. We hope that this medication continues to work for him for decades to come; and if for him – for many others also who may be diagnosed with the same or a similar rare cancer. However there are no guarantees where cancer is involved.

So we (my family) personally need more people talking about and becoming interested in rare cancers, we need more research into rare cancers, therefore we need a higher percentage of funds being raised for cancer going toward supporting rare cancer research to lift the survival rate to an acceptable level. Because we need Brendan.

As a concerned and protective wife, I am grateful every time a story like this one at abc.net.com is published;  rare cancers need as much attention as they can get.

Thank you for being apart of the awareness we are trying to bring to rare cancers and for talking about them with others.

Cal xx

Life is good and hope is limitless.

PS: feel free to share our story with others if you are moved to do so.

Find more information on Rare Cancers: Here

Find more information on Sarcoma: Here

Join our The Story of Us fb Group: Here

 Thank you

This is Brendan competing in the 2000 Australian Ironman; prior to his diagnosis he had always been fit, strong and athletic. As a right leg amputee now; due to the rare cancer he has…he is still fit and strong – and is working hard at being athletic again!

3 Comments Add yours

    1. calliemm says:

      thank you for spreading awareness of this very personal (to my family and many others) and important topic. Callie x


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s