Oct 21: 2016 -Brendan’s latest update

October 21: 2016

861: the number of days (approx) that we have been riding this cancer rollercoaster! Phase two begins.

Joining the MoST Program.

What is the MoST Program? The Cancer Molecular Screening and Therapeutics (MoST) Program is a clinical research program that Brendan has been invited to take part in. It is testing a new approach to providing a more personalised treatment for patients with cancer.

Before finding the chemotherapy tablets Brendan is currently taking to manage and slow down his disease, he had pretty much exhausted the conventional methods of chemotherapy treatment over the past two and a half years. To say we are grateful that he has been offered the opportunity to venture into these unchartered waters with the hope of not only  helping himself, but many others also – who are or may one day find themselves in a similar situation, is an understatement. We are feeling very hopeful.

Brendan has entered the screening stage of the trial. This stage may take around six weeks. When screening is complete, information will be provided on the results and the type of treatment that may be suitable. Options within the trial, clinical trials outside the MoST Program and other treatments outside this program could be possibilities moving forward.

These treatment possibilities, from what I understand, may be experimental and not yet used or approved as standard cancer treatments. Further discussion of options with Brendan’s ever growing team of professors, doctors and medical support staff will continue on receiving the results of this first phase of the trial.

The new team: a professor, two doctors and the trial co-ordinator were a lovely bunch. One of the many things we have learnt through cancer is that we have the brightest, most dedicated and compassionate medical practitioners, support staff and researchers at our disposal. Truly world class! I didn’t know until I knew – just how fortunate we are to have that.

As we welcome the new team, we are also very grateful that Bren continues to be under the care of his original team who have ensured that he has made it this far and who will be with him every step of the way as he continues.

Quirky Point: one of the most consistently quirky things we have noticed throughout this cancer experience at every point is the repetitive spiel (information about what is about to go down), yesterday we received it from doctor 1 as he took Brendan’s history, doctor 2 when she came in to discuss the trial, the professor when he came in to sign the consent form…his was the most concise (I imagine he is the most time poor), and then the trial co-ordinator. They see the funny side and kind of apologised as they went. I told them not to worry, we were actually critiquing each spiel, and would tell them who won at the end of the consult.

I think we will get on well with this team too, they’re nice people.

Bren’s 10 days of radiation starts on Oct 31, fortunately we can do that locally (apparently Port Macquarie is a new suburb of Old Bar). We hope to have some time to recuperate when the radiation is finished from what has been a really hectic month or so, made all the harder when my beautiful Mum was diagnosed with lung cancer a couple of weeks ago. (She has been told she is among the 30% who will/have developed the disease unrelated to smoking. Although she has been a smoker she gave up in 2000. Cancer has a crazy mind of it’s own)

Here’s to a little more R&R before the next step in the trial phase starts.

Life’s good and hope is limitless

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Turning a trip to Sydney for Brens trial consult into a parents getaway, was a nice way to move into this next phase of kicking cancers arse!

***

the main focus at calliemm.com  is to share awareness of the rare/uncommon cancer my husband Brendan has…

You can find more information on Sarcoma Cancer by following this link: sarcoma.
 
You can also join us at our facebook group: https://www.facebook.com/groups/storyofus4/
 
Or hit “The Story of Us” Category to read more about the in’s and out’s of living with undifferentiated pleomorphic sarcoma (UPS)
Life is good and hope is limitless.
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