To my wordpress friends: I quick apology for my month long blogging absence – with no explanation! Sorry! Unavoidable circumstance had left us with no wi-fi over the last month, and trying to blog on my old iphone4 was a nightmare. So I didn’t.
My husband and I do retro well in our house, but for some reason the kids don’t enjoy the fact that we resist updating…almost everything, including our phones until we absolutely have no choice but to. Sadly, we did have to replace our little, old, white VW Golf recently, as the window wouldn’t wind up and fixing them was more trouble than she was worth. It was a have to situation.
Our TV is older than many but works great, you just have to turn her on and off a few times before she warms up, and as I type this I’m looking through a pair of glasses that I have put the arm back on with a bag tie. Which works well and will do for now, I can see perfectly through them! I don’t think I would consider us frugal, more unwilling to give up on things that still have life and value left in them. My father has taught me well. Waste not want not – an old but valuable lesson.
So I haven’t been blogging, and have missed you guys.
What’s been going on? A lot really. As the days fly by at the speed of light and my little family float along in a bubble that we have both been banished to and have built around us, we are trying somewhat, but not terribly hard to keep pace with the world around us. (hence: why we lost our internet connection for a while, but that’s another, not very interesting, story.) We are simply Being in the best possible way we can right now, as we shift gear and go where this cancer juggernaut takes us.
For those who don’t know and aren’t on our family and friends fb group for updates on Bren’s progress, the last month has been pretty rough on him. Pain, treatment, travel, the vomiting and the general feeling of malaise that come with all of that, have been pretty horrible. Although I think he’s looking a little better now the trial is over for him, I’m not sure if he feels it, and he wouldn’t say if he doesn’t because he’s not a complainer, not even when he could or should be.
His daily life is limited due to the pain and there are no new oncology treatments on the horizon. Fortunately he has been able to go back on the pazopanib, which he was on previously, now the trial treatment has finished. We think the pazopanib was at least slowing the disease down before Bren went off it to start the trial, and so we are hoping that it will do that again. I would love to see him able to get off the lounge, where he is currently living 24/7 (it is the only place he can get comfortable,) and back to being as active as he was in January.
We’ll take swimming in the ocean, long walks on the beach with the kids and dog, sleeping in a bed and being able to sit in the car, comfortably, so he can go places and do things again. All the everyday stuff he could do before the trial that he can’t do at the moment. We want all that back for him, because the confinement is really hard. ‘Four wall, wash basin and a prison bed,’ comes to mind.
Bren started back on the oral chemo last Friday, so our fingers are crossed, prayers and positive thoughts are being sent out constantly and hope is limitless that he will get back to where he was again; as he has some more serious cancer arse kicking to do and it would be awesome if he was comfortable, strong and could enjoy himself while doing it.
We are as optimistic, hopeful and determined as ever…and very happy to be online again 🙂