Diary: 29th July 2014
Bren is through his first seven days post-chemo. It has had its ups and downs. He has had headaches and felt unwell but only threw up the first night after treatment.
He was fine until around 11 pm and then he threw up violently until about 3 am. He slept until five and then started throwing up again. After getting him back in bed, he slept again until I woke him up and helped him to the car in time to check out at 10 am.
The car’s motion brought on bouts of nausea that was difficult for him to cope with, even with anti-nausea medication. Stretching our four-hour trip home to about six hours, we stopped several times to wait until Bren thought he could keep moving. It was daunting to think he would have to go through this two more times at least. There where three cycles in this round of Chemo. God let one round be all he needs to get where he needs to be to have the tumour removed.
I struggled to give him the injection he needs to take 24 hrs after his chemo and was grateful to Val, our neighbour and a retired nurse, for doing it for me. We are lucky to have two bathrooms, as the kids and I can’t use Bren’s — the toxic waste he is getting rid of is harmful to our health.
Mood swings are among the side effects of his medication. And although they aren’t that noticeable to us — he is struggling with them. Chemo brain, similar to baby brain, wasn’t something we expected either. I had not heard of it and didn’t know that was what Bren was experiencing before reading up on it. I know I probably shouldn’t, but I google everything. Bren is good-humoured about his vagueness, but I know it frustrates him to feel foggy-brained and struggling to find the right words in conversation.
His lowered immune system is worrying as there is always some bug going around. We had to be extra careful this weekend when Tyz came down with a cough, runny nose, and temp of 39.8. She has been so unwell, but I am equally worried for her dad because if he catches it and ends up with a temp of 38 degrees, or more, we have to get him straight to the emergency department. Suffice to say — we are staying at home and keeping our distance from just about everyone for now.
I’m not sure what I was expecting but didn’t think the chemotherapy would make Bren as sick as it has these first few days. Not for the first time. We were told it gets worse as more treatments are had. I guess I was pretty naive to think the first one would be a breeze. He is starting to feel better. More like himself and is up and about. Thankfully he has colour back in his face, he is playing his guitar and teasing me again.
We have a cupboard full of hand sanitiser and glenn20 and a fridge full of fresh fruit and veg — our home is our safe place, and we are taking the next eight days to rest, recover and get ready for the second cycle.
Our new normal has begun.