14/03/17: immunotherapy update

ITT: 06-03-17 The sixth of March was a wet day in the city and marked a new chapter in Brendan and our family’s cancer story. We got to The Kinghorn Cancer Centre early on the morning of treatment, so walked up Victoria St a little way before it started, until we found a shoe box…

Bren’s Immunotherapy Trial: Update

Just a quick note to let everyone following Brendan’s progress know that he has been given the greenlight to start the immunotherapy trial. He will receive his first treatment on Tuesday. Thank you all for your kind words, well wishes, positive thoughts and prayers. We appreciate you all more than we could possibly say in…

Update: Immunotherapy Consult

You know you’re from Australia: when you leave for your husband’s doctors appointment at 8:30am and it’s almost 10pm when you get home. You’ve covered 630km by car in the round trip and got to eat really good hot chips and gravy, from the caltex – on the way home for dinner, yes you were…

Update: Radiation

Saturday 12, Nov 2016-11-12 Bren’s treatment update: That’s ten days of radiation for Brendan done and dusted! Even though the treatment centre was an hour up the road, it was an easy drive. Bren’s Mum and Dad volunteered to go with him on two occasions in the second week, as I was a little sleep…

Oct 21: 2016 -Brendan’s latest update

October 21: 2016 861: the number of days (approx) that we have been riding this cancer rollercoaster! Phase two begins. Joining the MoST Program. What is the MoST Program? The Cancer Molecular Screening and Therapeutics (MoST) Program is a clinical research program that Brendan has been invited to take part in. It is testing a new…

22 Day Push Up Challenge

Every now and then I’m quick enough to catch my husband doing his thing on video. Today it was day 1 of the 22 day push up challenge that he is participating in on facebook. Below you can read his fb comment on the reason why he is participating. Brendan Maloney:  “This challenge holds a deep…

Guest

Daily Prompt:Guest It was June, 2014. Winter! Cool, but not cold. Or not as cold as you might expect anyway, when our guest arrived. There was no knock on the door, and no excitement at his arrival. Shock! There was shock. There was anger, some confusion and frustration too.  He didn’t care. He was everywhere….

Tumour Clinic: Update

Good news! As the boys got comfy on one of the cream couches at the clinic yesterday, Tyz and I decided to go down to the reflection room to fill in some time before Brendan’s appointment began. We had no sooner walked in and made ourselves at home on the meditation cushion when Bren called…

July: Sarcoma Awareness Month

Brendan was diagnosed with an undifferentiated pleomorphic sarcoma in 2014, it is now metastatic. He lost his leg to the disease in march of 2015. This picture was taken maybe 12 weeks after his amputation. Two in five patients with sarcoma will go on to die from their disease. The effect of sarcoma on the…

Update -MRI Results

The Story of Us: Dr P rang last night; the results of Brendan’s MRI are inconclusive. We aren’t considering this bad news, bad would have been definitive evidence of recurrence in his residual. So it’s back to the city in 4 to 5 weeks to sit down with the entire team again,  to have a…

Update – The Story of Us

The Story of Us: two years down the track! It’s two years since we were first told that Brendan has an undifferentiated pleomorthic sarcoma: setting us on a path of discovery, heartache, hope, recovery, recurrence, disappointment, elation, exhaustion, confusion, anger, frustration, learning, teaching, acceptance, joy and love – to name just a few. A rollercoaster…

Bren’s Oncology Review

The Story of Us: We are home from Brendan’s latest oncology review in the city. After his 7am PET scan this morning, Bren’s entire team were assembled by 10:30ish for the review; logistically no mean feat I’m sure. Oncologist: Dr V, Orthopaedic Surgeon: Dr P, Radiologist Dr (Name has slipped my memory as it wasn’t…