Tumour Clinic: Update

 We had to fill in time yesterday before Bren’s clinic appointment. Tyz and I went down to the reflection room to meditate while the boys got comfy on one of the cream couches in the clinic waiting room. Bren called us back upstairs just as we made ourselves comfortable on the meditation cushions. They were…

We Think We Have Time

Then and Now The feature photo with this post is a collage of photos taken in the Easter School Holidays. It was March 2014. They are a profound set of images depicting our calm before the cancer storm. We looked to be and felt like your average family. We were relaxed, happy and at the…

Update -MRI Results

Dr Ortho rang last night; the results of Brendan’s MRI are inconclusive. We will head back to the city in 4 to 5 weeks to sit down with the entire team – again. The MRI results will be explained, and a conversation about the results and what treatment options are available will follow. Hopefully, 6…

Update – Two Years

Undifferentiated pleomorphic sarcoma. Two years ago, I would have struggled to pronounce this cancer. Now I can spell it and explain it – effortlessly. Cancer is my family’s Achilles heel. It created a vulnerable weakness that allowed heartache, disappointment, exhaustion, frustration, confusion, anger and pain to enter our sacred, happy and peaceful family space. Aggressive…

May Oncology Review

Bren’s day started at 7am with a PET scan. By 10:30am, we were sitting with his medical team for the review. Logistically it was no mean feat to get everyone together in one room. But these guys coordinate appointments like ours all day long. Imagine that.  There were four doctors, a registrar, two clinical nurse…

Handyman

You know rego is just around the corner when you see the husband sitting under the car instead of in it! Some jobs may take longer these days, and sometimes even longer to recover from – but that doesn’t stop a good handyman. Obviously from post picture – no seated job is too large or…

1st Ampuversary

Retrospective: a look back at March 31st 2015 The morning of Brendan’s operation came around fast. He had been in progressively worse pain for weeks. I began to fear the pain would kill him before he made it to the operating theatre. On one of the worst nights he had, only days before we were…

Living with Cancer

Calmly and compassionately, Brendan’s oncologist told us the cancer was back. Giving us time to digest the devastating news, we were not shocked when Dr Viv suggest limb removal as his last option. I felt like every ounce of blood drained from me through an invisible plug hole at that moment. I was terrified. I had…

Rare and Uncommon Cancers

One of the main reason I share my family’s story is to spread more awareness about rare cancers like the one Brendan is fighting. Like all cancers, rare cancers are indiscriminate. Brendan is living proof that it can happen to anyone. The medication keeping Brendan alive is listed on the Pharmaceutical Benefits Scheme, not everyone…