look up

Photo Challenge at A Daily Post: Look Up  shot on Fujifilm FinePix S4500 This photo was taken at the beginning of hope. It was the first time I had the chance to really look at this amazing hospital. A beautiful building in the middle of a city, set this day against a pretty blue sky. It… Continue reading look up

Guest

Daily Prompt:Guest It was June, 2014. Winter! Cool, but not cold. Or not as cold as you might expect anyway, when our guest arrived. There was no knock on the door, and no excitement at his arrival. Shock! There was shock. There was anger, some confusion and frustration too.  He didn’t care. He was everywhere.… Continue reading Guest

Tumour Clinic: Update

Good news! As the boys got comfy on one of the cream couches at the clinic yesterday, Tyz and I decided to go down to the reflection room to fill in some time before Brendan’s appointment began. We had no sooner walked in and made ourselves at home on the meditation cushion when Bren called… Continue reading Tumour Clinic: Update

July: Sarcoma Awareness Month

Brendan was diagnosed with an undifferentiated pleomorphic sarcoma in 2014, it is now metastatic. He lost his leg to the disease in march of 2015. This picture was taken maybe 12 weeks after his amputation. Two in five patients with sarcoma will go on to die from their disease. The effect of sarcoma on the… Continue reading July: Sarcoma Awareness Month

We Think We Have Time

I went in search of a photo this morning and came across an album that this post collage has been created from. I hadn’t seen this album in a while.  Life can change in an instant… This was March 2014: the Easter School Holidays; to me these are a profound set of images depicting our… Continue reading We Think We Have Time

Update -MRI Results

The Story of Us: Dr P rang last night; the results of Brendan’s MRI are inconclusive. We aren’t considering this bad news, bad would have been definitive evidence of recurrence in his residual. So it’s back to the city in 4 to 5 weeks to sit down with the entire team again,  to have a… Continue reading Update -MRI Results

Update – The Story of Us

The Story of Us: two years down the track! It’s two years since we were first told that Brendan has an undifferentiated pleomorthic sarcoma: setting us on a path of discovery, heartache, hope, recovery, recurrence, disappointment, elation, exhaustion, confusion, anger, frustration, learning, teaching, acceptance, joy and love – to name just a few. A rollercoaster… Continue reading Update – The Story of Us